Today is a write off… 

Today was very much ‘one of those days’. Last week was a busy week, and it’s most definitely caught up with me. I had no choice but to push on and butt heads with my conditions, and now I’m paying the price. Notice how I said push on, not push through? That’s because to me, pushing through is impossible. I can never push through. I have several conditions, and they will never ever be through with me. One of my pet hates is when people post in support groups about how they’re terribly ill, but they push through and so should we! Don’t get me wrong, I’m happy that they can. But they don’t seem to realise that there can come a stage when pushing through is just not possible. Pushing through morphs into something new, something harder. It becomes pushing against ever encroaching walls that are ready to push the life right out of you. Like a super hero in a cheesy eighties film, where the walls are closing in. Only much less glamorous. Last week I was lucky. I managed to get done what I needed to. But there’s many times when that’s just not possible. 

This being one of the days I was beaten, ironically whilst wearing my Wonder Woman nightie

But I digress. Back to today. Today was one of those days. The days where my health not only beats me physically, but mentally and emotionally too. I was stuck at the bottom of a pit of exhaustion and there was no way I could escape. The energy had sapped out of each and every part of my body, leaving me struggling to function. Worse than that though, I was drained of any emotional stamina I may possess. 

Usually on a bad day I try to fill my time blogging, or chatting with friends online. Today I did neither. I sunk within myself and wallowed in my hole. Instead of having a little cry and feeling better, I sunk into a maudlin limbo. Yet I had no reason to feel sad. This isn’t the first bad day I have had. They don’t normally leave me a weeping mess. Today however. Today did. Randomly and without notice I would find myself overwhelmed by sadness, tears streaming down my face. To the point I waited hours to write this blog as I couldn’t face the idea of crying yet again. The tears though, had no substance. For I had no reason to be sad. Or so I told myself. 

I had had a good week. I’d managed to get done what I needed to. I survived. On top of which, I’ve been given the go ahead for my surgery and some writing opportunities have come my way. This is all positive stuff!! But that’s the catch twenty two. I’ve found that when the good things start to happen is when we can feel the lowest. It sounds crazy, but it’s true. 

Let’s look at my list. I managed to get the things I needed done. For me that’s a huge achievement. However, I cannot help but see all the things everyone else manages to get done and feel belittled at my meager accomplishments. I cannot help but focus on the vice like grip my health problems had upon me, even whilst I was trying to do the things I needed. To reflect on the sinewy tendrils of pain that weave throughout my body, forever encasing me in a prison of pain. My operation was ok’d. While this is a great step forward in my treatment, it’s also terrifying. The thoughts of being put to sleep, or worse kept awake, and having my insides fundamentally changed fills me with dread. I struggle enough on a daily basis, how will I cope with recovering from an operation?! Some writing opportunities have come my way. Another exciting and wonderful development. More fear and self deprication. What if my writing isn’t good enough? What if I cannot cope with the work load? What if they change their mind and see me for what I really am, a bored cripple (I’m allowed to say it, I am one) scribbling an Internet diary? 

Absolutely everything has a sting in the tail when it’s processed by my head and heart these days. You see that’s what disability has done to me. It’s stripped me of my self confidence and filled the void with doubt and anxiety. Most days I can ignore the niggling thoughts in my head. I can dispel the creeping darkness inside me with the love and light provided by my family. But not today. Because today I just didn’t have the energy. So today I cried. I was sad. Then I cried some more. Because sometimes I just need to let it out. 

I would love to tell you that tomorrow I’ll feel better and be back to my sarcastic self. But honestly, I don’t know if I will. My health is flaring and exhaustion is gripping me like a vice. But I can tell you this. It’s ok to have days like today. It’s ok to feel exhausted and sad, and as though you’ve just had enough. Feel those emotions, hell wallow in them for a while if you need to. But remember that tomorrow is a new day, and while we can’t guarantee it’ll be better, we know it’s not today. Today will be over soon, so just get through it however you need to and know you’re not alone. 

Remember, it’s just one of those days. 

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